Hello.
I think maybe you should try to speak with Eileen E Jumikis, she is a member here. She helped me alot in the beginning when we thought mom might be going that route. I'll try to find that address for you.
Good Luck.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.