 Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | Rochelle,
We share the exact same diagnosis. Mine was right tonsil with 2 lymph node involvement. I too had a total of 3 surgeries including a modified neck disection.
In August I will celebrate 2 years cancer free. My Docs tell me that 80% of recurrances happen in the first 2 years and 90% in the first 3. In other words, there is reason for a bit of celebration at the 2 year anniversary (you are close).
I have a bit of stiffness in my neck from the surgery, but do not have any real pain. What is it that you are having issues with? I was treated in NY at Beth Israel, where were you treated? Hang in there, we will all help each other thru this.
Regards,
Rob
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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