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#21836 12-28-2006 06:33 AM | Joined: Jun 2005 Posts: 72 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2005 Posts: 72 | Laura - I am sorry you have to be here - but the OCF site/board is the absolute best resource for information about any Oral Cancer.
The treatments are tough - but it is the few weeks AFTER the treatments that are the hardest. Everyone handles the treatments differently - some have few complications, other have many. My husband was in the latter group. Get the Peg tube -- if you don't use it, fine. But it will be there to help you stay hydrated. Another huge plus for the tube was the ability to take meds through it. Most of the meds are available in liquid form - make sure your pharmacist knows about your treatment and she will be a tremendous help. What meds don't come in liquid form can be crushed (be sure to ask first though!). Keeping the pain under control is crucial.
Read through the 'getting through it project' posts for some 'what I wish I had known' tips - you may find some good ideas there.
Your daughter sounds like a trooper. I would recommend that you make arrangements for help. If you feel good and don't need extra help, then that would be great. Your body is going to be going through hell and truthfull, it is going to probably knock you on your behind some days. this is where the confidence that your daughter is taken care of comes in. You can better concentrate on healing if you are not worried about her.
You have a tough road ahead of you - but you can do it!
Carol R.
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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