 Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Patsy & Doug,
As you can see from my signature, I too had an unknown primary the first time round. They were never able to find it. Had XRT at Mercer Medical which is HUP facility. All follow up has been through HUP.
Anyway, just wanted to say welcome. Don't panic if they can't find it. My RO said sometimes they show up after your start radiation. But it also may have already 'left town' or be so micrscopic that it won't show in any test. the XRT should take care of that.
Were all here to help you through this. Read the previous posts and FAQs and then ask your questions. Always make certain there is someone to tkae notes at all dr appointments and have you list of questions ready.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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