I started this as a new thread even though it was another thread that caused me to think this out loud.

CAREFULL! that is what we must be!

Occasionally, probably because we are passionate about cancer survival, we might stray beyond advocacy into the twilight zone of sounding like medical experts. In fact we collectively might have a great deal of experience with this disease, that allows us latitude with regard to advocacy but most of us are NOT trained medical experts. Those of us whom have lived through radiation treatments might suggest that it is a necessary treatment to survive when in fact, as wicked as this cancer can be, a VERY high percentage survive if treated in the early stages. If you are a true stage one, 90 to 95% will be cured. Should we be so caught up in the game that we always recommend radiation even to those stage one people? I say: TOUGH CALL. Generally we are not qualified to make that call. For us to make comments that might lead someone with a 5% chance of having a future problem, to the conclusion that they have to have radiation, I SAY NO, we would be over-stepping our boundaries. Should we suggest that this cancer is noted for causing future problems? I Say MAYBE but lets not forget that for every person we see on this forum, there are hundreds if not thousands that do not have future problems with this cancer. Even a stage 4 case might have a 50% chance of NO OTHER PROBLEMS. And yet people die from any stage


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.