 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Lynn,
Sorry to hear about your husband. I am a bit ahead of your husband on this rough road but it sounds pretty similar to what I started with. As others have suggested, spend the time to look over the main portion of the website and you will find answers to most of your questions. Information gives you the power and authority to direct treatment; what you do with that and how it affects your attitude is a choice.
You are in what I believe is the toughest role of all. You will be required to dig deep into yourself and pull out miracles by the hour at times. Unless you take the time to find some time and support for you, you will have the most difficult journey.
Hang in there and learn all you can.
Blessings and best wishes to you and your family.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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