Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Kerry, My experience was that my oncologist was the primary care doc for the first entire year. He ordered all of the initial scans, managed all of my medications and also responded to requests from the RO (since she was from a different provider). For the first 6 months I saw all 3 docs every 6 weeks. My H&N surgeon gave me the most frequent exams, and still does. Most ENT's and H&N surgeons don't order scans as a rule. My RO and MO are still the ones to do that and I see them semiannually at this point. The RO (who is also at a major CCC is still the most thorough of all of them and usually I see a few student doctors as well).
Don't be in a hurry to get get scans early in the process - they usually indicate many false positives due to healing tissue. They aren't the "path" to recovery that one would think - it's all about when you think less about cancer and more about real life. It's about when you can go ouside and prune more than one shrub at a time because you're starting to get your strength back. I too am self employed and it was very tough going for a while - even with preplanning and a large ELOC on the house.
Unfortunately, there will be no immediate response to the end of his radiation Tx, in fact, it will get worse for possibly as long as 2 months. He may feel even worse because nothing is actively being done to fight the disease. Then his progress will be measured in 3 week intervals for a time. Figure 1 month of recovery to each week of radiation.
This is a VERY slow process from a brutal treatment. It requires great patience and probably anti-depressants as well - it is good that they have him started on something. They could "bridge" it with Xanax or something faster acting until it kicks in.
One day at a time.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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