Dsymae, With the assumption that you will be your son's primary caregiver, I urge you to read all of the "posts on getting through it" on this site. There are lots of good suggestions to help you and your family get organized for this road ahead, and I promise you that being organized is going to help you alot. You will be hearing lots of medical stuff that is unfamiliar, meeting several Docs, dealing with Ins. issues[Does he have Ins.?] Get a big 3 ring binder and start filling it. Everytime you see something on this site that pertains to his treatment, print it and put it in your notebook. Have a section for each Doc he sees so that you can write down questions and their answers. Please keep us posted on what is happening so we can support your family. Amy