Hello KevinJMS,

That was a horrible ordeal, I am so sorry you guys are dealing with that.

Does that mean he has lost the grafted flap too then too? (It kind of seems like that, that the graft was attached to the remaining tongue and the vascular blow out supplying blood to the graft, and then the necrosis of the remaining natural tongue, seems like that's what the graft would have been attached)?

Yeah that's a question for the expert surgeons. It might be a situation where once things are stabilized and the cancer concerns are controlled reconstruction surgery later? Not sure if that's something dealt with semi-regularly at Comprehensive Cancer Centers or if that may be best done at like the top CCC's with a second opinion or consult with someone who says they have high confidence in being able to get a flap back allowing swallowing and speaking in the future.

Sorry I have no experience with anything like that, just wanted to give a response so that you know you've been heard.

That's a rough go of things. Hopefully the both of you have a good support network of folks assisting with things.

Glad he is ambulating well at home at least and trying to get used to the new tubes and tube feeding and all that.

Did the hospital or cancer center have any support groups or social workers or that kind of thing?

I'd be asking all those questions to your surgeon(s) and seeing if there are any uber-experts they might refer him to if it is something they don't normally do.

Hopefully you kind find a bit of peace and solace in each day amidst the chaos and shock, try to carve out what enjoyment you both can.

Praying he finds some healing and good news with treatment progress and future options for a reconstruction.