Hang in there Bad_Kitty,

I can't offer any advice, I have not been there, I can only express sympathy for your described suffering, as I have not had radiation. Hopefully Nels will be on here soon and see this as I know he has been down your path. I have not had radiation.

The infections complicate things even more, sorry you are experiencing that.

Regarding the PET and delaying the biopsy until after the PET, they may want to have it done so they can plan out biopsy locations.

Hopefully some of the stalwart veterans who have been through similar ringers as you are in now may have some tips.

Can you do ice chips or something like that? Or maybe consult with a pain management specialist? Or a palliative care specialist? (I just rechecked, and they don't just do terminal patients like my Dad, they do help people who are suffering immensly with curable diseases too).

My Dad's Palliative Care physician was an oncologist for many decades and finished out his career in palliative medicine, and he was a God send.

I hope you find some things that work for you and you can start to notice some improvements.

Sincerely,

Chris