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| | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Awesome for you. I have known Brian for years and he was a tremendous help to me when I got my tube in Jan /22.
I am like you - I am not as hard core as you as Brian. I use my formula in the morning with chocolate free mixed in. That is my lazy - newspaper - Facebook time so my gravity feed is set to slow drip.
Other meals are blender meals. I enjoy the food the family that the food drinks. Eg. Tonight I blended ham, scalloped potatoes, protein powder, mixed vegetables and formula. I always strain. Always. I am often surprised which mixture has enough sediment to block the mesh screen and slow/stop the draining. I am very fortunate that I do t have food envy. I was overweight for 67 years and I have an excellent sense of smell and memory so I don’t feel I am missing something.
I am good with going out for dinners and others eating - providing I can have a cocktail or two while they eat. I am a social drinker only so for me having a drink or three makes me feel it is an occasion for me too. I might have 4 drinks a month so I am not near the AA MEMBERSHIP. For me - it is a psychological thing - where I have something to look forward to same as those selecting their menu items.
Like you - I do not want aspiration pneumonia again. I am also carefully sbout all the cleaning that needs to be done. GOID Lord. The amount of time needed to keep extensions and syringes, etc pristine is a lot of work. In canada unless you are below a certain income threshold then you are not covered for delivered no cost supplies. My work medical insurers are assholes and cover very little of my supplies. They will cover G tubes and extensions but nothing else. We both know that is a lot. I therefore work st extending the life of feeding bags, syringes, etc.
Great to talk to you.
Please write whenever you like.
Donna.
(A long time OCF MEMBER - PANDORA is significant of hope.
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
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