OP  Contributing Member (25+ posts)
Joined: Feb 2012 Posts: 36 Likes: 4 | I was diagnosed with Cachexia roughly 5 years ago and was told I’d be lucky to survive a year or so. I truly don’t know how they came up with that prognosis since Cachexia is not a very well understood syndrome.
The docs (all of them -my entire care team) had only a vague understanding of this condition.
It’s been an incredible journey trying to treat what isn’t clearly understood.
Age 60
DX SCC T3N1M0 R BOT 10/04 135lbs
TX Hemi-Gloss 11/04
MET Neck 12/04
TX 01/05 G-Tube,PortCath,6wks chem+6wks chem& IMRT,Max dose
06/05 RND,42 nodes 1 bad,All clear 120lbs
DX femoral hernia 09/09,repair 10/09 94lbs
HBO 11-12/10
11/10 All teeth out,05/11 dentures
DX hypothyroid,04/13
DX inguinal hernia,repair,04/15 127lbs
DX cachexia (CACS),03/16 98lbs
DX EPI, TX PERT,10/18 115lbs
DX RFS,11/18
DX iron deficiency anemia,02/19 118lbs
TX infusions,04-06/19 115lbs
DX calcified atheroma carotid
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