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| | Joined: Mar 2002 Posts: 4,918 Likes: 70 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 70 | My worst issues developed 18 years out. All radiation induced. Dysphasia that put me on a PEG full time for everything. If you are getting one I can help you with some insights that made it bearable, and easier to deal with. That also includes a regime of blending real food in a Vitamix that allowed me to stay healthier, and gain weight. That takes a little nutritional education, but happy to help you find your way. Living on canned pharma food is not a long term solution you will find.
I also had terrible ORN which required the removal and rebuilding of the left side of my mandible. That was really a major deal and took three 9 hour surgeries last summer to finally accomplish. That creates other challenges. All this combined lead to a loss of speech that most people can’t understand. So much for decades of lecturing on viruses and cancers. Take a look at the website in the complications of treatment area for dysautonomia. It’s an important read.
So please feel free to, with others here, ask me direct questions, if I can help you have an easier path than my own I will certainly try. By the way I have a little place in Santa Fe. I have lived there off and on in different homes, and I’m a native New Mexican.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
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This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
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