My worst issues developed 18 years out. All radiation induced. Dysphasia that put me on a PEG full time for everything. If you are getting one I can help you with some insights that made it bearable, and easier to deal with. That also includes a regime of blending real food in a Vitamix that allowed me to stay healthier, and gain weight. That takes a little nutritional education, but happy to help you find your way. Living on canned pharma food is not a long term solution you will find.

I also had terrible ORN which required the removal and rebuilding of the left side of my mandible. That was really a major deal and took three 9 hour surgeries last summer to finally accomplish. That creates other challenges. All this combined lead to a loss of speech that most people can’t understand. So much for decades of lecturing on viruses and cancers.
Take a look at the website in the complications of treatment area for dysautonomia. It’s an important read.

So please feel free to, with others here, ask me direct questions, if I can help you have an easier path than my own I will certainly try. By the way I have a little place in Santa Fe. I have lived there off and on in different homes, and I’m a native New Mexican.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.