Hi Mary, thanks so much for responding. I contacted a Dr. at the University of WA. His name is: George Laramore. He specializes in ACC. A wonderful man. Gave me some great advise and answered several questions. However I would be very interested in contacting the support network at MD Anderson. Do you have the phone # of the person I'd need to contact? If so would apprecitate it very much!

Yes, the 15% survival rate after 15 years scares me a lot! I was diagnosed at age 45 and it's amazing how 60 sounds so young to me now! I did have perineural invasion and my margins were within 1 mm, too close for comfort! I try to keep a postive attitude, and not let myself dwell on it. None of us know when our time is up, so we should all live like it could be our last day!
I hope you're doing well and congratulations on finishing your radiation treatments!! I'll keep you in my prayers! smile
Take care,
Beth