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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Maria, Ive had this done myself and know how hard it is when your mouth doesnt work how you think it should. Its a huge surgery filled with so many things that could possibly go wrong. There are several versions of doing the mandibulectomy but this is such a major surgery with so many individual differences its not easy to know what would be the best choice. Some do the fibula, some others will opt to use a cadaver jawbone, some do a titanium plate designed for each individual. The best thing I can suggest is to seek out some of the top surgeons for second and if necessary third opinions. Long time survivors sometimes have late effects show up where they need different treatment to address their long term survivors issues. Since a mandibulectomy is so complex it really is vitally important you find and use someone highly skilled. Those kinds of specialists could be located a bit further than you would like to travel but in the long run distance isnt a huge part of getting the top doctors who you know will do everything the correct way so the result is a once and done surgery instead of having problematic complications with a lessor skilled doc.
I wish you the very best with this!!! Hope it all works out like you want it to. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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