HI ALL,
I am Cancer free 22 years but as a result i have ORN of the jaw. I got worked up for a fibula flap for my entire mandible last year. After months of testing the plastic surgeon said i was better off without the ELECTIVE MORBID surgery. I agree I dont want to risk my life for a grueling surgery but every day is challenging. I constantly get jaw abscesses and have 2 fistulas on my face because of the degenerating jaw bone. Does anyone know of any other surgery besides the fibula free flap??? I will travel where ever needed. I have been through many HBOT and picc lines for treatment. I also take Trental and Vit E bid for bone growth.
Thanks for any input!
Maria


Maria 33 when diagnosed with SCC, partial glossectomy with skin graph from thigh,rt side nodes removed,ten nodes positive, PEG, 30 RAD tx, 1998. Scans clean.30 HBO tx-Massive dental work 07-08, ORN present 2009.