 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | My husband was in a phase 1 trial of immunotherapy a few years back. He never had pain from the infusion. What the doctors were watching for were things like rashes and other unexpected changes. A few of the forum members did get Keytruda but I don’t recall anyone mentioning pain after infusion. I would strongly suggest that you contact your wife’s doctors and discuss the pain with them. They will be able to reassure you if it’s nothing or they will be able to bring your wife in for further examination. Very often, patients and caregivers need to advocate for themselves. Is there perhaps a help line at the hospital that you can access if you can’t get hold of the doctor immediately?
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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