Nels,
Sorry to hear your story but thank you for sharing. Reminds me to keep pushing. I spent most of the day on this.

My dentist was the one who took 2 second to make me get a biopsy. Primary care said my tongue was one of the healthier ones he has seen, oral surgeon told me it was related to HPV. It isn't and it kept growing. They all told me not to worry. Kept growing so I Called my doc who treated my thyroid cancer....he sent me to Onc surgeon. Now it "seems" to be an issue. Never smoked, I only drink wine for the most part, not heavy drinker, active, runner, water sports, hiking etc. I stopped all drinking but about 2 glasses a week at this point. Second opinion at MSK early next month. NYU said they could see me Oct 7th. Cross fingers.....would like to stay ahead of this.

I am sending good thoughts your way...... I hope you are doing well. So appreciative of you reaching out.
Mrs. Karl