Thank you for sharing.

Last radiation was 6/1. Prior to radiation/chemo, pain regiment was Morphine ER, Hydrocodone, and CBD/THC drops. I know this is last part is controversial for some and I respect that, but it was recommended by his oncologist and really helped.

After week 3 of radiation, we went down to just the Hydrocodone. Things were really looking up and his outlook was so positive. Treatment ended and things seemed to be going ok...

And then, about 3 weeks ago, everything went downhill. He is now on Morphine IR, Gabapentin, and CBD/THC drops again. The pain seems to be getting worse daily. I just don’t understand why everyone says this is “normal” and am really struggling with accepting that. I felt so prepared for the treatments, the feeding tube, the port, the hydration sessions, the side effects, etc, but no one talked about how hard things could be POST treatment. I know it’s different for all patients, but I wish I could have at least been told it may get way worse before it starts to get better.

I’m going to schedule a call with the hospital’s pain management clinic tomorrow morning. I am desperately searching for anything any of you might feel I am missing. At this point, I don’t know what else to do. We are still 3 weeks out from all of his post treatment scans/tests....