Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | So sorry you have to be a part of the forum, but know that you are welcome.
First thing, you may want to get a dry erase board for your sister while she’s in hospital so she can make her needs known. These dry erase boards are available in dollar stores. Some people use an app on their phone but learning to use a phone app in a week may be the last thing on your sister’s mind. Don’t worry about what you don’t know, my experience is everyone at the hospital and this includes the visiting nurse is very kind. All you need to do is to ask. They will show you what you need to do. As far as the feeding is concerned, we got a show and tell from the nurse. We had to show her we knew what to do before she would allow us to go home. One you are home, you can ask the visiting nurse about whatever you may have questions about. You may want to write down on a pad all the questions you have so that you can ask the doctor/nurse when you have an appointment or when the nurse comes to the house. Be organized so that you can track the amount of water, or doses of medication your sister has taken so that you can talk to the doctors if problems ever arise.
Of course, you are welcome to ask on the forum any time.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. |