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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | You could find out if there are clinical trials that might benefit you if you ask your doctors. Im sorry OCF does not have info on clinical trials unless OCF is associated with the trial. Its way too much info that is constantly changing, starting, stopping and being cancelling before results are obtained. Our small nonprofit organization does not have the manpower to investigate and/or staff to compile info thats relevant to OC patients for clinical trials. At OCF we protect our members by guarding their personal info. We discourage our members from publicly posting any of their personal info as it could be easily obtained by spiders/webcrawlers or other unscrupulous businesses who have automated computers trolling the web searching to collect personal info to sell or use for their own benefit (usually to make money or exploit individuals). Something else I thought of that could be very important for everyone involved with all clinical trials (no matter in what capacity) needs constantly be aware of... confidentiality! The following is an excerpt obtained from the results given when I did a quick Google search for clinical trials. The sources below may have what you are looking for or you could try going directly to the source of where you first learned of the trial (Im not sure why it brings up AIDS... Im guessing it could be by incorrectly thinking HPV is a typo for HIV???) .... FDA Clinical Trials Search. Search a database of Federally and privately supported studies available through clinicaltrials.gov. Learn about each trial’s purpose, who can participate, locations, and who to contact for more information. Clinicaltrials.gov. Conducts more advanced searches National Cancer Institute or call 1–800–4–CANCER (1–800–422–6237). Learn about clinical trials for people with cancer. AIDS Clinical Trials and Information Services (ACTIS)External Link Disclaimer or call 1–800–TRIALS–A (1–800–874–2572). Locate clinical trials for people with HIV. AIDSinfo. Search a database of HIV/AIDS trials, sponsored by the National Institutes of Health’s National Library of Medicine.Good luck!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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