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| | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF! Im very sorry about your recent diagnosis!!! At this time of uncertainly, its not easy knowing what to do next. The pandemic has got to be making a tremendous impact on all cancer patients world-wide! Since you are waiting to get started, might as well make the most use of the time, If you havent yet gone for a second opinion, now might be a good time to look into it. For US patients, a comprehensive cancer center (CCC) is the best place with the top oncology doctors in the country. A team based approach ensures all specialists stay on the same page. Patients are able to attend their tumor board meetings where they can participate and have an opportunity to ask and learn about their treatment plan. The following links below you should find helpful. The main OCF site is overflowing with important info about anything and everything pertaining to oral cancer (OC). Best wishes with everything!!! Main OCF Site, Understanding NCI list of CCCsUS News Best Hospitals List
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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