Hi all!
So far I have learnedl a lot just reading others post.
I thought it was time to make my first post.

8/16/19 Diagnosed with LASCC BOT HPV 16 + T2N2
8 teeth extracted , port and PEG placement
September 2019 started TPF induction chemo x 3 treatments.
11/25/19 started chemo/radiation cisplatin weekly, 33 RADS.
COMPLETED treatments 1/13/2020.


I am 7 weeks post treatment and I still have mucositis from my mid palate to the uvula and beyond. I am In the dry mouth phase and no longer have the choking, thick mucus. I am totally dependent on the peg for nutrition and hydration. In the last 2 weeks I have been able to take my medication by mouth and no longer carry a "spit bottle" around. I pretty much have to use my numbing mouthwash prior to swallowing anything except my own saliva.
My Rad doc feels I'm healing a little slower than normal. I know everyone has a different experience, but I am discouraged at my progress so far with eating and drinking. As I read through some of the posts on this forum, it seems there is a wide range in healing after radiation.


LASCC BOT T2N2 diagnosed August 2019
Induction chemo x3
Chemoradiation 7chemo, 33 radiation