thanks Christine! this has been quite trying for me for sure!

the doctor just called and now wants to do an MRI because she couldn't reach an area that she wanted to biopsy. She also suggested he could get a second opinion from Mayo clinic which a lot of people do around here as it's only 4 hours north.

He's stressed out beyond measure again. He is supposed to have 2 interviews next week thank goodness as he needs a goal of some sort in his life, as you say, a reason to get out of bed.

He asked what I thought and I said, hey get the MRI done, get all the information you can and then I will decide how i feel about it. We need all the pieces of the puzzle first.

She did suggest Keytruda or immunotherapy and he said, that's just kicking the bucket down the road to delay dying. I know nothing about immunotherapy, I just said get all the info you can and hey, no one has regretting going to Mayo for a second opinion from my experience. They tend to be ahead of the game when it comes to difficult situations.

Not sure what i would do if I didn't have this board to listen and learn from honestly. This cancer journey is a lonely road to travel.

I will say he is not smoking but he was drinking very very heavily the past few months after losing his job. They told him yesterday to not be drinking. I looked at him and said, see...no more drinking and of course he rolled his head at me. I warned him twice now.

to be continued......


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free