Hi wizgee,

Sorry to have you on this group page for your diagnosis, but I can tell you this is the best place to be with your diagnosis.

I know you don't have a physical support network, however please share your journey with us and we'll support you as best we can. You are not on your own with us.

I'm glad our experiences have helped you decide to get a PEG. I too hated the thought of it until I realised just how much I'm going to need it during rads, and how much I used it for a couple of weeks post surgery. It really helps and isn't a hindrance in any way.

I can imagine the 38 mile drive will become quite difficult around week 3 onwards with your RADS & Chemo, which is when the fatigue starts to kick in. Does your hospital have patient transport? Or is there anything else transport wise you can use?