 Supporting Member (50+ posts)
Joined: Sep 2018 Posts: 71 Likes: 1 | Hello!
Feeling ALL those emotions in a random, rotating fashion is completely normal! I had tongue cancer also and it started as a small bump and then out of the blue it really started to grow! I got my cancer diagnosis on September 18th and had surgery on October 1st. I feel like had my surgery been put off longer than I would of lost a lot more of my tongue and would have to have had a rebuild. I got lucky and only lost a fourth of my tongue and they used the skin from my neck dissection to 'close' the side of my tongue the cancer was cut from.
I had all my work done by top cancer doctors at a CCC, the only one in this midwest and I have no regrets. They are completely knowledgeable on all things oral cancer and compassionate to no end!
My advice is focus your energy in making sure you are getting the very best care by the very best cancer doctors available to you! Then you will know you've done all you can to ensure a successful outcome and can try to relax and wait for surgery day!
Laura Age 40
Tongue lesion on left side grew and was hurting in mid-August
Dx as squamous cell carcinoma on 9.18.18
Left Neck Dissection and tongue surgery, lost a fourth of my tongue on 10.1.18, tumor had grown to a T3
Margins were clear except front section of tongue margin had three stray cancer cells that were not in the tumor
Additional surgery 10.18.18 to remove another cm near where the stray cells were found
33 radiation treatments from Nov 2018 through Jan 2019
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