Hi. My wife had surgery for scc of gums and is to start radiation therapy in a couple of weeks. I just joined this site a few days ago and have had no response yet to my request for the experiences of people who have undergone proton radiation, as far as side effects.
That being said, I have done a bit of research on the topic. My impression, and it is only my impression, is that proton and photon (or conventional) radiation have similar effectiveness and that proton therapy has less severe side effects. Certainly, it appears to me that side effects are no worse with protons. The proton radiation oncologist we talked with says the side effects should be less. The conventional radiologist we talked with says there is no difference in side effects. Our medical oncologist says he doesn't have enough experience with patients who have had protons.
Again, it would be nice to hear actual experience of HNC patients who have undergone proton therapy and whether the side effects were as portrayed by their radiation oncologist.
Incidentally, we live in a city with a proton center and a Dr. with considerable experience treating tumors in the head and neck. Also, our insurance (Medicare/BCBS) will pay for protons...many won't.
I hope this helps and some proton patients will share their experience with us.
Good luck and best wishes.