Im very sorry to read about everything you have gone thru to figure out what you have going on. Sometimes patients go thru alot of testing to narrow down what could be causing all their current issues. Maybe its a couple different things? None of us here are medical professionals so unfortunately we arent able to help you very much without a diagnosis. Everyone knows their own bodies the best and they know when something is not right. Putting all those clues together can be a real challenge!

Oral cancer is not a common illness. Sometimes its not easy to diagnose either. Many of our members who did not have a visible tumor went thru similar frustrations in their search for a diagnosis. On the other hand, Ive seen many come thru here all complaining of similar symptoms and having a tough time finding out whats happening only to find out its NOT cancer. This has happened to many new members who were absolutely certain they had cancer, luckily the didnt. Unfortunately oral cancer frequently does not have many clear cut symptoms that show up when a sore, spot, red or white area are not visible. Many do not have any pain at all, I didnt. While others will have different things bothering them. Sometimes, the more someone thinks about something the worse their symptoms become. With so many symptoms, its hard to know what the best place to go would be. It sounds like you must be in a rural area without alot of choices with medical professionals. If you continue looking for the right doctor to find whats going on, I suggest an ENT the specializes in treating oral cancer (OC) patients. You do NOT want to end up with an ENT who mainly puts tubes in young childrens ears as they probably have not treated many with OC! Another avenue would be to call your insurance company and ask for their help in finding the right doctor who is not affiliated with the ENT's office you already went to. Cancer centers are the next step after a diagnosis has been made.

Heres a link to the main OCF site with helpful info. I suggest reading the Oral Cancer Facts and Discovery/Diagnosis sections to help understand oral cancer more. I wish I had more info to help get you into the right doctor for the right kinds of testing to get to the bottom of whatever is going on. I wish you all the very best, please let us know if you how you make out. If you are diagnosed with oral cancer we will do our best to help make it as easy as possible. Good luck!!!

Main OCF Site, Understanding