| Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Welcome to the forum, although i’m sorry that you have to join our circle of friends.
You will probably find out about your treatment plan tomorrow, whether it will involve surgery, chemo and radiation. Are you being treated at a comprehensive cancer center where they use a team approach and have a lot of experience treating oral cancer? Have you considered getting a second opinion?
It’s not easy to take this bad news without anxiety as it brings up all kinds of questions. When you find out more about your treatment plan, it may help for you to confide in a few friends who can give you some support down the road, like driving you to treatment, helping with housework or just lend an ear. Do come back and post any questions you may have; we may not have all the answers but we have all taken the journey either as patients or caregivers. Or you may simply want to vent — which is fine too.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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