Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | ((hugs))
Glad he's doing okay so far, and that you are too! And it's perfectly reasonable to worry about what your loved one will look like after. It took ages to get my husband to 'fess up that it was one of his worries ... he doesn't like my look without my dentures in, but he's working on dealing with it. Doesn't mean he loves me any less. (I was just glad he got to a point where he could talk about it.) Anyway ... just to show, you aren't alone in that!
Can't answer to the rest of it, but there seem to be a lot of folks here who've had recurrences and repeat treatments, and come through all right, so it must be doable somehow ... and they'll likely be along to offer reassurance and more substantive answers.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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