Welcome to the forum. Head and neck cancer treatment is a grueling journey. My husband had oropharyngeal SSC and was in a phase 1 trial for PDL1 (which is market as Opdivo now). It is comforting to hear that others are being helped by the drug. John’s trial took place in the spring of 2015, so it’s only been three years and a bit. It’s encouraging to know that researchers are always coming up with new medications /treatments for cancer, so hang in there as you never know what new treatment is around the corner.

Do check in or post to let us know how you’re getting on. I’m sure many patients would learn from your experience.

Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.