What Christine is saying is that only doctors can give those answers ... real doctors in person. Even if anyone here actually was a doctor, it'd be impossible for them to diagnose long-distance. Too many possibilities, too many variables ... needs to be determined by someone (or several someones) you see in person. If you're not getting those answers from your doctors, I am very sorry. It's super frustrating when the folks you depend on for those answers won't or can't give them to you. Sometimes they just don't know ... they can treat the symptoms but may not know the cause. Sometimes the cause doesn't matter. Sometimes, of course, the cause matters very much.

If your doctor told you to 'keep it under control' did he give you any options on how to do that? Just keep an eye on the nodes? Special massage techniques? Anything? Following those directions would be your best bet for keeping healthy, and if he failed to give you something specific to do or look for, then ask again (or get another opinion). I had nodes removed as part of my surgery, and I do special massage to keep things flowing in that area, which is very helpful. But they can also get swollen just from ordinary illness. My family doctor's pretty good at figuring out which is which (and keeping me calm in the process). If he wasn't sure, he'd send me to another specialist. So ... my advice would be, ask more questions and ask them what they think you should be doing.

Good luck!