So, I registered for this site on October 2 at the suggestion of a friend and then the next day my Mom, who has stage IV SCC of the tongue and jawline and underwent surgery and jaw reconstruction using bone from fibula back on September 10, was found unresponsive at 4 p.m. on October 3 at the rehab facility to help her wean off the ventilator. They gave her meds Oct. 3 at 3:50 and she was responsive (Mom can't talk as she has a temp trach but she can nod, mouth words, hand gestures, shake head yes and no, etc.) and 15 minutes later, was unresponsive.

She was taken to ER and it's been a time since. She developed sepsis and possibly had a heart attack, all due to a urinary tract infection that went undiagnosed. I was with her the Sunday prior and she kept clutching at her belly and the nurse asked her if she had stomach pain, Mom shook her head "no" and continued to clutch. The nurse asked her if it was her crotch. Mom shook her head "yes". They gave her pain meds. It never occurred to me to have them check for a UTI. My brother visited her the day before all of this happened and she was doing the same thing.

I requested her medical records from this rehab place just to see if a UTI was ever considered. I was told the day after she was admitted to ICU it would be a miracle if she survived. It's almost a week later and she's still fighting. I go from crying to being angry. She is barely responding to commands. She opens her eyes but can't focus on anyone. She did slightly squeeze my hand when I asked her to a few days ago. The goal right now is to fight the infections (she may also have pneumonia now as well). If she becomes stable enough, they want to do a heart cath. An MRI and other testing did not show a stroke. She's been experiencing Afib on and off . I was also told by two doctors that sepsis can cause high troponin levels, so I'm not entirely convinced she had a heart attack. A UTI may cost my Mom her life. The odds were stacked against her to begin with, but she did wonderful through the surgery. She was having issues with the ventilator, but I was hopeful they would be able to help her. She was going to start radiation late October/early November. I wanted to have her home by Christmas.

Just venting....I can't believe all of this is happening frown


Daughter of 65 year old with SCC of tongue and jaw
T4N2M0 - diagnosed July 5, 2018
2 rounds chemo with Cisplatin, Taxotere, fluorouracil - August 2018
Partial glossectomy, mandibulectomy with fibula free flap - September 10, 2018