Mine had to be replaced at one point because of it causing pain ... it wasn't quite in place anymore or something. I didn't deal with granulation till it was removed (and then it took a couple different doctors till I got one to take it seriously as a problem, which I now know from here was bad care on their part). I don't recall it ever leaking ... definitely something not right there.

Hope they help hime and at least get the pain under control. frown


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery