Just remember doctors work for YOU!!! If they arent fully explaining things to your understanding continue to ask clarifying questions. If it was me, Id specifically ask the doc who else could better explain this so I can understand it. Go to the office manager and so on until you get the info you are looking for. The squeaky wheel is what it takes sometimes to get answers. Just always be polite as possible, Ive found most medical professionals really do try their very best to help everyone especially for the patients who are nice and polite.

Im sorry but our members of OCF, we're just patients/survivors and caregivers without medical degrees or backgrounds. Our interpretation of tests is usually very limited to our own specific conditions. For 99% of our members its oral cancer. Most of us have not had any experience with other less serious ailments which is why your questions do not get the replies you are hoping for. Maybe your family physician would be a better resource to ask this sort of thing. Asking oral cancer patients/survivors and their caregivers to help with issues that are different from what our site primarily deals with will not get you the help you need.

You may also go for a second opinion if you feel the test results were not properly handled and the second doc may be able to look into it. Im sorry but this sort of thing is a bit beyond what the majority of OCF members understand or can help with.

I hope you can one day soon get to the bottom of what you have going on! Hopefully you will never go thru oral cancer, its treatments and the seemingly never ending recovery for it. Best wishes!