 "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Hi Amanda,
I’m not by any means an expert on PET scans, but did have a few. One PET did show activity in some lymph nodes post-treatment. My doctor sent me for a fine needle biopsy which extracts sample cells from the lymph nodes - no cancer. He then ordered another PET scan a few months later and all clear. Lymph nodes can show “activity” on a PET scan for other reasons - ex. recent infection.
Make a list of questions to ask your doctor(s). Bring someone with you to take notes. Some doctors will allow you to record your discussion which I did a number of times.
Wishing you the best!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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