Hi Christine - That is so intense. I'm sorry you had to suffer like that. I am being treated at a CCC in Oregon. My doctors there include otolarygologists and ENTs. I get the impression they're out of ideas for my fistula. I'm seeing a new surgeon next week so fingers crossed!!
Thank you.
ACC 7/16/16 Hard Palate Stag I, age 47
Surg 11/17/16 maxillectomy & RFFF reconst
30 IMRT end 4/31/17
-85 lbs in 4 mo, no caregvr
6/17 surg fistula repair attempt failed
9/17-5/18 Oral opturator fittings to block / cover fistula failed
6/18 Buccal Fat Pad reconst failed
Clear PET & MRI 11/17 & 6/18
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