​Hello - my name is Cathleen. I have had an open fistula where my hard palate meets my soft palate for over a hear now. I can't drink liquid without it not coming out my nose. Food and liquid has caused a chronic infection in my nasal cavity and sinus plus some hearing loss. I have to irrigate my sinuses 4 to 6 times a day. My nose is constantly running.

I've had one failed surgery and months of trying to get the right fit on an oral opturator. I'm now at a point where I'm considering another surgery.
I'm wondering how many else there are out with similar issues and or experiences with an oral fistula repair? I'd love to hear about your experiences.

The 3rd surgery I'm considering is called a buccal fat pad reconstruction. Anyone familiar with that?

I'm happy to hear any and all comments / suggestions.

Thank you.


ACC 7/16/16 Hard Palate Stag I, age 47
Surg 11/17/16 maxillectomy & RFFF reconst
30 IMRT end 4/31/17
-85 lbs in 4 mo, no caregvr
6/17 surg fistula repair attempt failed
9/17-5/18 Oral opturator fittings to block / cover fistula failed
6/18 Buccal Fat Pad reconst failed
Clear PET & MRI 11/17 & 6/18