Hi, Will from Portland. I live in the midcoast. Went to college in your neck of the woods, at USM, though. Majored in biology, so I do understand what little Ive read. I'm scared ro look into it too deeply. We've been referred to Mass General by my dad's oral surgeon. His consult happens next month. He cares for a live-in client who is dependent on him in every way, so this diagnosis is earth shattering to my family and the family of his client. It's very stressful to know he'll have no income and his client will have no home while he is treated and recovering.

Thank you, Christine, for all the info. I'll read what you've sent when I'm feeling brave again.

Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC
Mandibulectomy and free-flap reconstruction 5/30/18
Diagnosis changed to SSC.
Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18
Decided not to do any more Cisplatin after the first one.
Finished treatment on 8/31/18.
3.19 Abscess & Recurrence wide mouth resection
4.16.19 Scapular Flap Reconstruction surgery
9.6.19 Clear CT!
8.6.20 Clear CT!