Hi Vicky, Thank goodness you found the OCF and particularly that fantastic woman who was first to respond to you with that great info. The people on this site are some of the strongest and most helpful people in the world in my opinion. Honestly... I don't think I would have survived without them. I see that you're in Maine and I'd like to make myself available to help in any way I can. I can also tell you about the my experiences with doctors in this area. Positive and negative. One in particular (Boston) who is probably the most amazing, smart, passionate, knowledgeable and capable doctor there is. His students and interns instilled more confidence in me than the 3 doctors I had visited prior to being lucky enough to find him.

Lots to learn , lots to do and lots of "waiting" Ugggg.... waiting was the worst for me. Get back to me. I'd love to chat.

Will (Portland)