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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Heres a bunch of little things to help make things easier for you and your wife....
Start making a list of everyone who offered to help out. Make sure you have all their contact info so you could text or email them. I doubt you would be able to call anyone for a while after the mandibulectomy but you . I was in bad shape after the mandibulectomy, I wasnt able to remember things from one day to the next, concentration was beyond my capabilities due to my mind not being able to focus or process any complex ideas. I wasnt even able to read a book during my extended hospital stay after my mandibulectomies. Thats just my experience, everybodys different. You might bounce back very quickly, and fare much better than I did thru all of your treatments and recovery. The most critical of times like the first week after your surgery and the first couple weeks you arrive home after your surgery is when you will need your wife the most. She's going to have her hands full taking care of your son and running back and forth from the hospital. By having friends and relatives take a few shifts with you in the hospital it will help your wife to not miss so much work. You will need her down the road while going thru rads and the first month or so after finishing rads. Friends and relatives can help out with that as well. They can turn out to be a huge asset in helping with your son too. People genuinely want to help but most dont know what to do. You're very fortunate to have people nearby you can ask if you need something.
I suggest calling The American Cancer Society (available 24/7/365) and ask about their volunteer driver program. It takes a little while to get everything in place to line up the drivers so dont delay in calling them. Cancer survivors and caregivers are the drivers, its really nice to be able to talk with others who have been thru cancer even if it is a different kind than what you have. Plus its a huge relief giving your wife or whoever is taking you to your appointments You will have doctor appointments to recheck your sutures (possibly staples) that you will not be able to drive yourself to. Ask your doc and people at the hospital if they can set you up with a visiting nurse. Ive found if you dont ask for this it is often skipped. Its so much easier when you first come home after your surgery for the visiting nurse come to your home to check you out than to I strongly recommend avoiding public transportation, crowds, even movie theaters, grocery stores, your childs school and daycare if they have one. All those places are germ factories! You can not risk picking up a bug now or while you are trying to recover. Washing hands and hand sanitizer are something you should stock up on. While I was in the hospital I kept my own hand sanitizer right on my table within reach. I was not steady on my feet and couldnt wash my hands as much as I would have liked.
I hope these suggestions help. Best wishes with everything!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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