Is your RO proposing a stronger dose of radiation as a result of the PET scan? Is chemo being considered, so as to wipe out any stray cancer cells? Those may be options open to you aside from another neck dissection. Knowing how weakened the body is post radiation, a neck dissection may not be the best way to go. Of course, like Christine says, I am not a doctor and this is just my personal take given my experience as a caregiver.

When my husband was diagnosed, the MO told us that if the cancer stays above the collar, i.e. not having migrated to the lungs or other parts of the body, the doctors feel quite confidence about wiping it out.

I understand how frustrated you are, and I would imagine you probably feel like the rug’s been suddenly pulled from under your feet. I’ve felt that over and over as a caregiver. Is there any possibility that you can call your RO and talk to him? I don’t know how responsive your doctors are. The RO my husband actually discussed things with me on the phone (I did only once, and not all the time) after I had gone home and thought about the situation calmly. I really appreciated the effort on his part. You don’t necessarily have to wait for your next appointment is what I am saying. I have also spoken to the MO on the phone about medication, once she even called our pharmacy to talk about what she was prescribing. Maybe you can give calling your doctor some thought and hopefully you’ll get a response.