I don't know if it reassures you, but my first round with the cancer was strictly surgery. We weren't even thinking cancer at that point, only a sore that would not heal, and my ENT surgeon was going to cut it out to give it a fresh start for healing. He did, of course, have it biopsied during surgery, which meant more cutting while I was under anesthesia, but the surgery was the extent of the treatment for that round. And that was all we needed at that point. So you aren't necessarily in a hopeless position.

That said, you're right to still be asking questions, especially if you have another area you want checked. Get the ENT or the Gastro guy to agree to an actual biopsy, if you can? That's if you don't still have an oncologist like Christine suggested ... that would certainly be a better choice.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery