Welcome to OCF, Cheri! Im so very sorry that you are going thru this with your daughter. As a parent, I understand how difficult this must be for you! Do your very best to not get too far ahead of yourself. I know when its your child involved its not easy. Its heartbreaking seeing anything bad happen with your child. My daughter needed surgery for her kidneys when she was a baby. Her doctors wanted to push it off as long as they could. Her condition didnt allow her to wait too long. At 22 months old I watched her happily take the surgeons hand and walk with her doctor into the OR. Thats a vision I will never get out of my mind.

I suggest doing a search by typing Ameloblastoma into the search box towards the upper right of any page. You will see there are many results of other members who have been thru this. From what Ive briefly read, Ameloblastoma is usually a benign tumor which is a very good thing! Before you agree to anything... get a second opinion!!! Surgeons cut and will always recommend surgery, but once its removed they can never put things back to their exact functionality. I would suggest finding an ENT who specializes in treating oral cancer. They should have the most experience in ameloblastoma along with other oral cancers. Your daughter will probably also need a biopsy to confirm exactly what the mass is.

Best wishes with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile