You need to see a regular doctor about the back/kidney issues, too. Or at least take some cranberry pills or something. (Those work surprisingly well to stave off impending infections, but you STILL want to follow that up with a trip to your doctor, trust me, especially if it's been going on for a while.) I only suggest the infection because if you're panicking, you're likely dehydrating yourself (or at least, I do that), and that can lead to infection. Might as well deal with it. No, I am NOT a doctor. Just had some experience with that particular issue.

I'm really late to this thread, so I have no idea what else you may have done in between. Did you ever get an appointment, and an answer? I hope it was a good answer.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery