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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Yorky, Gloria is sooooo right! Live for today!!! Do your very best to avoid wasting your day away by staring at your mouth in the mirror and fretting about dying from an illness you do not even know if you have. Especially when several medical professionals discounted a cancer diagnosis. If you are unable to get past these fears you will need to seek out a mental health professional to help you manage everything you have written here. Our site has some very very sick members, some are terminal and many very good people over the years have passed away from oral cancer and complications from it or treatments.
I understand being lonely, feeling misunderstood and isolated are big issues you have but those things should be able to be managed with a therapist and anxiety medications. I feel our site is not the right one for you to express your concerns. We are not medical professionals, we are a group for patients and caregivers who have oral cancer. I must not spend any more time on this when Ive already given you all the best avenues I can think of to get the help you need. Months ago many other members, myself included pointed you in the right direction to get whatever help from medical professionals you needed. Its a very unusual situation when we are unable to help someone. Your issues are well beyond the scope of something our group can assist with. I do not mean to brush you off or come across as being stern or uncaring, Im the most caring, understanding, compassionate person you will ever know. My attention is needed by others here who are very sick and fighting for their lives in a real fight of a beast we call oral cancer. Im sorry but I must ask you to find alternative sites for help. Your situation is beyond the scope of what we can assist you with.
Wishing all the very best with everything, especially wishing you a happy, healthy future.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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