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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Congrats to your husband for being a 20 year survivor!!! He is one very fortunate man!!!!
If your husband has alot of phlegm, ask his doc about getting a portable suction machine. I dont know if that is what you meant by a suction pump? The portable suction machine is the best thing to help patients with phlegm. He will need to get a prescription from his doctor to get this from a medical supply company. I also suggest using a waterpik on its lowest setting to help keep his mouth extra clean and help with removing phlegm. By adding a tablespoon or 2 of non-alcohol based mouthwash to the warm water it will help his mouth to feel fresher. Extra water also helps to thin phlegm. He may also want to rinse his mouth at least 3x a day with a mixture of warm water, 1 tsp baking soda and 1 tsp salt. He should swish the mixture around in his mouth for at least a minute before spitting it out. If he is coughing alot, how about a humidifier used in the bedroom at night? What about cough medicine? Check all the suggestions with your husbands physician. Could he have thrush? Maybe thats also bothering his mouth?
You may also want to ask his doc about something to help with your husbands depression. Many patients (especially men) are reluctant to speak to a therapist or take meds to help them cope with the drastic changes their life has gone thru since having cancer. Depression is very common among oral cancer patients, and not surprisingly their caregivers too. This wont go away or get better on its own so hopefully your husband will be open to giving a therapist and/or medications a chance. Some meds take 4-6 weeks before the patient sees a difference. Its worth a try, at this point he probably feels he doesnt have anything to lose. I also have many major after-effects from OC.
Maybe your husband would benefit from things Ive picked up after having oral cancer (OC). My life is dramatically different than what it was like before I had cancer. In many ways its so much better, more fulfilling now. Ive always been a positive person who likes to find the good point in every situation, even the bad ones. Ive also been overly independent which has helped to get me thru some pretty rough situations after having cancer. I dont know if these traits have helped me cope with my much altered after-cancer life. Everyone needs a purpose in life, a reason to get up in the morning. Ive found that here at OCF. I have also found great satisfaction in being able to help others. Maybe being able to talk with others who have been thru OC would help your husband? AT OCF, we have walk/run events all over the country where free OC screenings are done and OC survivors get together. I think given the opportunity to meet fellow OC survivors would have a big impact on your husband. Maybe it would help him to see that even with limitations, there are many others out there like himself. Some have it far worse while others have bounced back with barely any noticeable signs of having gone thru OC. Its worth looking into.
Good luck!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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