Hi Joy Faith,
I thought of you when I was down at Stanford for my check-up last Thursday. We've probably seen some of the same doctors and I can say I've been very happy with my care over this seven year journey. I am one of the 7% who get this cancer with no known cause (no HPV, no alcohol/tobacco). They describe it as "genetic factors". I have had radiation twice and as others will tell you, it's best to prepare yourself now by trying to eat well before you may lose your sense of taste. My radiation oncologist recommended Scandi shakes (which they used to sell in the Stanford Walgreen's but also can be purchased on amazon) because I couldn't stand the Boost and Ensure drinks when I needed more calories. You mix Scandi with milk so it's more like a milkshake. I also purchased the vitamix blender which still serves me well when it's too much work to eat a whole meal, I just blend protein powder, fruits and veggies for a great nutritious shake.
I agree with Steph H that the swallowing and neck exercises are important as well as getting out and walking every day. Stanford is a beautiful area and even the shopping center has gorgeous flowers every season. I wish you the best and a speedy recovery when your treatment is done. A favorite verse I like, that goes well with your name is, "A joyful heart is good medicine."