Hi Joy!
I did TORs 5/9 at Stanford with Dr. Holsinger. Started rads at Stanford 6/13 with Dr. Le. I chose TORs knowing we could identify the primary (mine was unknown) with an 80% likelihood and could then reduce the average radiation intensity from 70 to 60 Gy as well as reduce the primary radiation volume. I am having prophylactic radiation on both sides of the neck at lower intensity.

Be sure to do the swallowing and neck exercises and keep walking/exercising as you can. I do my rads in the afternoon on linac 14. That team is the best!

If you'd like to write, speak, or meet in person since we are both getting similar treatment in the same time frame at Stanford, feel free to direct message me. smile

Best of luck!
Stef

Keep fighting friends!

Me -- currently 53 years old
SCC diagnosed 3/7/2017 at age 48
Staging SCC HPV+ T0,N1 primary unknown
PET 3/16, no activity, biopsies 3/23 benign
TORS surgery identified 2mm tumor in BOT (vallecula)
Cancer restaged T1, N2, M0
Begin 30 sessions of radiation (60 Gy) 6/13
Completed radiation 7/24/2017
1st MRI clear 10/23/2017!!
2nd MRI clear 10/17/2018!