Im glad I was able to help you! Thats why we're here, were one big extended family who will help each other get thru the rough spells smile

Make sure you get blood work with a full order to check thyroid and testosterone levels before you start treatments. This is easy to do now but you cant go backwards years later when you have problems with your thyroid or energy levels and get what your normal numbers should be for these things.

If you are getting cisplatin for chemo ask about the smaller weekly doses instead of the 3 big bag method. That could be for any chemo carboplatin or Erbitux too. Smaller weekly doses are easier to tolerate and have less side effects. For our type of cancer (SCC) chemo alone doesnt do much except shrink the tumor. Chemo is used to help make the radiation more effective.

Watch out for cisplatin too!!! Pay close attention to any change you have with your hearing... if you notice a change tell your doc immediately. Cisplatin is known to cause high frequency hearing loss and its permanent. Also any difference in kidney functions as there can be problems with your kidneys from chemo too. Thats why is so important to push extra water on chemo days. I suggest doing more water the day before, the day of chemo and the next day or two afterwards.

Maybe you could puree some of your favorite foods? Do your best to eat them now before you have any changes in your sense of taste or ability to swallow. Those things are only temporary but they can make this so difficult to get thru. Like anything, we all have good days and bad ones. Dont worry we will be here to get you thru this.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile